All proceeds go to the Aidan Jack Seeger Foundation. The Aidan Jack Seeger Foundation was established to address the need to help families affected by ALD, help pass newborn screening with respect to Adrenoleukodystrophy (ALD).
What is ALD?Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 17,000 people. As it is an X-linked genetic disease, it most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain’s neurons — the nerve cells that allow us to think and to control our muscles. It knows no racial, ethnic or geographic barriers. The most devastating form of ALD appears in childhood, generally between the ages of four and ten years old.
Please visit - www.aidanhasaposse.org - for more information on ALD and how you can help save a life. Be sure to join us for the second annual Aidan's Run this coming June. Call (718) 609-9184 for more details.
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